It sounds like a campaign slogan, but it could also be a description of her personal stellar job. We meet at the house in Surbiton that she shares with her businessman second husband, Roger Symes, shut to exactly where she was born 54 years ago. She employs a group of five personal assistants (“not carers”, she corrects me, firmly but with a smile, “ours is an equal relationship”).
They do anything from acquiring her up and driving her to the Palace of Westminster to opening her airways if she stops breathing. She are not able to stroll, has misplaced the use of her appropriate hand, and lately stopped consuming due to the fact of issues with chewing and digesting, so has to be fed intravenously overnight.
“I’ve by no means had a huge appetite,” she says, as if describing missing a meal. “I’m only 4 stone, but I do like meals, so it is challenging. But I even now like going to lunch and dinner. If the host looks embarrassed, when everyone else is eating, I just say, ‘Put a massive glass of wine in front of me.’ I can even now enjoy a drink.”
This can-do mindset is in her DNA and has observed her by means of blows that would sink others, which includes the death from an Aids-relevant illness in 1993 of her 1st husband, Graham (right after he was provided infected blood in the treatment of his haemophilia).
But the ILF, established in 1988 by a Conservative government, has played its portion, also, in her triumphs, and in numerous other lives. “Britain was a world leader in the 1990s in taking folks like me out of residential care, in creating us noticeable in the community,” she recalls. “These cuts threaten to consider us back into the shadows. ‘Safety net provision’, as they like to get in touch with it, will ensure none of us die, but if you are stuck in a back space in isolation, the consequences can be fatal in terms of depression, illness and dying earlier.” So acquiring rid of the ILF will price lives? “There is undeniably a link amongst independent living, well being and daily life expectancy,” she replies, choosing her phrases meticulously.
The ILF has been beneath threat considering that the dawn of the Coalition and the age of austerity, but a Substantial Court challenge by disability campaigners sidetracked plans for a whilst. With that now defeated, the minister for the disabled, Mike Penning, announced last month that the ILF would shut in June 2015.
In concept, the ILF spending budget will be seamlessly redistributed to regional authorities to spend on disabled men and women in their region, but the Government steadfastly refuses to ring-fence it. “Even the great regional authorities are so strapped for funds correct now that they are going to raid this spending budget,” predicts Lady Campbell. “Whitehall is aware of that. It is what constantly happens. If it is a option among my care package deal and somebody in neighborhood government retaining their occupation, I know which they’ll chose.”
It represents, she says, a reversal of the entire “disability revolution” that has transformed society and lives. “In my 25 many years of involvement” — she has been variously chairman of the British Council of Disabled Individuals and of the Social Care Institute for Excellence, and a disability rights commissioner and co-director of the National Centre for Independent Living — “there has constantly been a culture of collaboration amongst disabled individuals and policymakers, and a shared knowing that it may require expenditure but it pays dividends several instances more than. That is gone.”
Her dismay is clear and her frustration runs deep. “In latest many years there has been a quite clever manipulation of public viewpoint. There are good disabled people — Paralympians, for illustration — and there are poor disabled men and women who are called ‘scroungers’. Individuals with mental health problems or finding out troubles also frequently fall into the 2nd category. There is been an boost in detest crime towards disabled men and women reported by the Equality and Human Rights Commission. But, when the spin-physicians in Variety ten spot a story about fraudulent use of disability benefits, they make certain that is blown up out of all proportion. It can make me so angry.”
With the Coalition apparently dead set on this modify, although, what can be completed? Lady Campbell is in no mood to admit defeat. Her speech in the Lords this week pressed the case for an independent monitoring group to measure the impact of the change. “The Government inform me there is no require, but that just makes me inquire what they are afraid I’ll discover out.”
And she is not ruling out some thing far more direct. “One of the happiest days in my daily life was in 1991,” she remembers, “when we have been campaigning [for rights for disabled individuals] and we positioned our electric wheelchairs in the middle of the road on Westminster Bridge and turned the power off. We stopped the traffic and the police didn’t know what to do with us. That made politicians consider discover …”
She doesn’t finish the thought, but I’ve got the image. A leading member of the Residence of Lords becoming manhandled off the highway in her wheelchair by the police. Lady Campbell is all set for one more battle against the odds.